Last week kinda sucked. For many different reasons…. It was filled with so many “endings” – and I cried for 2 days straight. First was having to say goodbye to a family friend. What an unexpected, sad situation to be so alive and seemingly healthy one minute – and then have things tragically unfurl ...
Dear Anna (and all other super special needs siblings!): I’m sorry that holidays aren’t the fun and magical days that I had as a kid, and that I always imagined for you. I’m sorry we don’t decorate: I had so much fun decorating the house with my mom…But in this house – if it’s not ...
Sometimes Eric makes himself melt down. He is perfectly fine one minute, and full on crying and screaming the next. We don’t understand it – but we just sit back and let it happen. There is no way to stop it from happening; and we’ve learned to believe that he just needs to do ...
Recently, at a doctor’s appointment with Eric, I had mentioned that we were in the midst of looking at colleges for our daughter. Immediately, the doctor said “Oh that’s gonna be so awesome for her. She is really gonna be able to have a chance to spread her wings now.” It kinda stabbed me in ...
Coincidentally, we are in the process of looking for new schools for both of my kids. For our daughter, because she will be graduating high school soon and heading off to college. And for our son, who will be moving into high school next year. Honestly, I’m not sure which one is more stressful or ...
Does anyone else have this same dynamic in their family? I could be home alone with Eric all day (or all week) and he pretty much does his own thing. He interacts with me – asks me for food or other things he wants, and plays on the computer or hover-board, etc. But whenever Mr. ...
Here is a look back at the accomplishments from 2017. I never intended this post to be so long….. but once I started reminiscing I realized there was truly so much to celebrate and so much that Eric accomplished this year! 1.January It was 10 years since Eric was diagnosed – and wow what progress he ...
It’s always the DAY BEFORE the full moon. I didn’t even need to look at the calendar this morning to know that there was going to be a full moon tonight. Last night Eric’s body was taken over by someone or some thing. When it happens it’s always the same. It’s so weird. And ...
Mr. Bacon went back to work today…. and Anna is away enjoying some fun in the sun with her friend this week – so that leaves me and my little guy together for a day of fun. I know I could never compete with Pop Pop and his arctic blast visits to Sesame Place….. ...
It’s hard to look back at baby pictures. I see the twinkle in his eye and am reminded about his little budding personality and how he had such a mischievous grin whenever I walked into the room and found his latest “mess.” I was a bit of a paranoid mom. I was scared he was ...