A couple of weeks ago, a new friend asked me how I deal with the uncertainty over what our future holds; how I fight off the fear of not knowing what lies ahead for my son and my family and if he’ll ever be able to live independently. Here is my answer: First of all, ...
“I still want more…” After receiving Eric’s autism diagnosis, I always wished I had a crystal ball to help me see where he would be in 10 years. Well, almost 10 years later….here we are: Then// he spoke only a few words and grunted and pointed a lot to communicate. Now // he has A ...
I said recently that I was sent off on this road trip without a map to follow. I was wrong. I had the perfect map: it was with me all along and drawn by the most loving and selfless person I have ever known. All I had to do was follow her example: give myself ...
So… I like to think I’m a very optimistic person. Look for the silver lining. Make lemonade out of lemons. Dance in the rain…. you get the idea. But recently, my daughter pointed out how I had been focusing on the negative. If you missed it, “Sister Bacon” (aka Anna) did a “facebook live” interview ...
I can’t take away her fears. But I can hold her, listen, and make her trust in her soul that she’ll never face them alone. I can’t melt away his anxiety. But I can support, comfort him, and be his rock. I can’t answer all of her tough questions. But I can listen and offer ...
I took Eric to one of his favorite places today that’s about an hour away. About 10 minutes after I got on the road I realized I was never going to make it all the way there without stopping for a bathroom break (too much water after my morning workout!). I immediately started stressing out ...
Recently I took Eric to a local indoor water park for a few hours. He loved it. I had a few very interesting social observations. One of the most obvious was how we, the parents of special needs kids, never miss a moment in our kids lives. We are ever present, hyper vigilant, (over bearing ...
It’s all about the experience. Eric has a few borderline obsessive compulsions. He loves to go to Target, Walmart, or BJ’s to buy a toy. What kid doesn’t, right? But, Eric specifically only wants to buy “Cars” characters. Yes, he has several dozen of each of them. We kind of just went with it for ...
Last month Mr. Bacon and I were blessed to be able to go away on vacation without the kids. (Thank you Grandma and Pop Pop). We needed the break. REALLY needed the break. We have been to this place before with the kids back in 2012. So I found myself “seeing” the kids in different ...
Yes, you should be expected to put the needs of your children first. Yes, you should be expected to sacrifice greatly for their happiness. No, this does not mean you should be expected to feel guilty about, or bury your valid, honest emotions. No, you are not a bad parent for taking time to process ...